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Listed!
So yesterday around 4:30 pm, Ava was officially put on the waiting list for a new heart, praise God!! When you are waiting for an organ donation in Ontario you are listed with Trillium, the gift of...
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Day by day
There has been so much going on these past few days. Ever since we’ve listed Ava it feels like a whirl-wind and it’s been so busy and I haven’t been getting much rest or down-time and I think I’m...
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This little turkey…
So this little turkey… one day she has me thinking that she is not long for this world, and the next day she is happy and has more smiles than I’ve seen in a long time… Her uncle John and aunt Erin...
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Up and Down
If this journey starts to feel like a teeter-totter ride with all its ups and downs, I do apologize and honestly can say that I wish it was different! Ava had that great day on Friday, but then...
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A verse for Ava…
Our little Ava is a very sick girl right now in critical care. Yesterday afternoon her temp started to come up and her heart started beating faster and it was still high at 10:00 last night so I came...
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Thank you!
Once again, thank-you to everyone for your prayers and support right now. And we also wanted to shout out a huge thanks to Jason’s sister Lija’s co-workers at the London Courthouse… they had a...
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Waiting
This morning when I walked in the room to see Ava it seemed that a cloud had lifted… her fever is gone, her heart-rate is back in the normal range and her oxygen saturation looked great… so wonderful....
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Birdy on a wire…
Last night Jason and I watched Nik Wallenda walk a tightrope over river gorge near the Grand Canyon on TV. Talk about nerve-racking! To be honest I was only half watching and part way through...
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Small, frail and weak
Our sweet little Ava… she’s doing pretty good all things considering. But when I was holding her today she just felt small frail and weak. She really hasn’t gained any weight in the past couple of...
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Still asking!
We had a good day today – and that was good because Jason left to go home for a few days last night and his mom came up in his place which I’m so grateful for. It’s nice to have help and there really...
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July 1st
It’s July the 1st and so I will say Happy Canada Day! We live in a great country, and as you can imagine I am very grateful for our Country today… a country where we get amazing health-care without...
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Congestive Heart Failure
Well thankfully this morning Ava is feeling much better. They finally managed to get some fluid off of her and so her fluid balance is less positive and her liver is back down to a normal size....
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I hope He will…
Ava is seven months old today – where is the time going? And she was feeling a bit better which was nice to see. She got a blood transfusion yesterday so that helped her hemoglobin levels and...
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Too much excitement
Well Ava had a great day, I wish I could say the same thing about myself! It all started when I was sitting holding and rocking Ava around 9:15 am this morning in our room at the hospital, when I...
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A Little Stress Relief
We got the best kind of stress relief this weekend, we went home! After my “episode’ on Friday, or as my dear darling husband likes to call it, my cry for help (oh haha, he’s so funny) I was more...
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Encouraged
Well this morning started out well as I was happy to be back at the hospital with Ava and she was happy to see me and we had a really nice snuggle… But then rounds came by. And the doctors told me...
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the Zoo
Today we went to the Toronto Zoo! Through Sick Kids Child Life Program, the Zoo graciously had us as their guests (free of charge) and we went and enjoyed a day with the kids and the animals. It...
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A Verse and a Video
Ava had an OK day today, I think her teeth were bugging her and that made her a little cranky, and that tired her out so she slept most of the day. But just before dinner she woke up and was happy...
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Another bump in the road
Well three days ago I took that video of Ava and she was quite happy – and then yesterday the little monkey went downhill again. When I went to see her yesterday morning her heart rate and...
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When..
Just a quick post tonight… but I wanted to say that Ava had a pretty good day. This morning when I got to the hospital Ava woke up and I took her off her CPAP and she was really cuddly, she nestled...
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