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We Believe
So this morning Ava got her picc line re-wired and now has a double lumen picc! We are all quite pleased. And I realized today that Ava is pretty smart. This morning a member of the transport...
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Groundhog Day
So have you ever seen the movie Ground Hog Day? The movie where Bill Murray is a weatherman and ends up living the same day over and over and over again? Well I used to love that movie, but as my...
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My theory
These past few days have been crazy again! And it was good to be home for a bit, but I won’t lie, being home is also stressful. Stressful in the way that when I’m there I just want to stay, but then...
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Going forward…
Well I think my theory is busted… my theory about how perhaps if Ava’s heart-rate stayed low she wouldn’t get a fever. Last night Ava received morphine every 6 hours, which definitely kept her...
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Things don’t just happen…
It has been so crazy around here… crazy and busy and I’ve been so tired, so I apologize for not blogging. Kinda crazy too because Ava hasn’t been doing that well. Too be honest when I saw her...
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Poor baby….
Oh our Ava. This morning I got a call from the hospital at 5:00 am to tell me that Ava wasn’t doing well again. I made my way over where I found her once again with an elevated heart-rate, a fever...
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And they’re off…
So today. Well, this morning when I called the hospital first thing they told me that Ava was currently sleeping but had woken up previously and had been very irritable and hard to settle. Because...
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This storm…
Thank for everyone for your prayers! And for your encouragement… once again. The emails and the comments we receive on this blog mean so much to us, and I wish I had time to answer every one of them,...
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He will never fail….
Well it’s pretty amazing, but Ava has been feeling a lot better the past two days. And she has been losing some weight – which is fabulous as she has some water-weight to lose, and her liver is...
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A tiny vacation
So I’m pleased to report that Ava still is doing amazing. She is spending quite a time off her CPAP these days and she is happy and full of smiles. It’s kinda strange in a way because her weight...
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His perfect timing
I have some great news for everyone, but I will keep you waiting and first tell you that little miss Ava had another great day. Our plan was to go to church today, so when I accidentally woke up...
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Quick jot…
Today was an OK day for Ava. I got to the hospital early this morning because I didn’t want to miss any of her awake time, and I was rewarded by a happy smily girl, who gave me a nice snuggle. I...
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It’s about Him
So poor Ava is definitely fluid overloaded again. We had such a stretch of good days that I think we all got complacent, and then WHAM…. she retained way too much fluid. So they started giving her...
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Fun with food
Today was thankfully a pretty good day for Ava. I went to the hospital early this morning – around 7:30 am – because Ava is typically awake at that time and then is usually ready to nap again by...
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Hard to hear…
This morning when rounds came they were still being led by doctor who the head of the heart transplant program, and she knows her stuff. She was the one who decided earlier this week that Ava should...
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Thank-you
Thank-you to everyone for praying, we so appreciate your prayers and kind words of encouragement. Praise God they decided this morning that Ava didn’t need to start the second heart drug after all!...
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Here in the power of Christ…
Our family is re-united, and it’s actually back here in Toronto. I didn’t end up going anywhere yesterday, as I ended up staying for Ava because she wasn’t doing that well. And then the doctor sat...
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Home
We are home, and it feels strange. I think it’s maybe like how a solder feels after being away on the battle-ground, and then finds himself home and the battle is over. We are grieving the loss our...
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How can we ever say…
Thank you. Thank-you to everyone for your heartfelt support and generosity. For taking the time to be with us the past few days . For praying without ceasing for us. And for those of you who could...
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One week ago…
Ava’s been gone one week already. We’ve been 7 whole long days without her, and I think it’s taken this long for my heart to really start understanding that Ava is really and truly gone. She’s not...
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